There’s also the fear of rejection – the worry that others might not understand me or may grow frustrated at having to repeat themselves.
Some friendships have quietly slipped away because I can no longer recall the people, our bond, or the moments we once shared.
But I’ve learned to navigate these challenges by surrounding myself with supportive family and friends who celebrate my victories, big and small.
LIVING WITH THE DISEASE
Not long after my diagnosis, I was referred to Dementia Singapore, the leading social service agency in specialised dementia care.
There, I found a community that understands my situation. Through activities like memory cafes, exercise programmes and even opportunities to become an advocate for others, I’m reminded that life shouldn’t have to stop because of my diagnosis.
I’ve also learned strategies to help manage the progression of the condition. For example, I follow a structured daily routine to create a sense of stability and familiarity. Around the house, I keep a whiteboard as a visual reminder, where I jot down appointments and tasks to keep myself organised.
Most importantly, I stay active by sharing my experiences as a co-facilitator at Voices for Hope, a programme that aims to empower people living with dementia and their care partners on a self-advocacy journey.
In 2021, I wrote a poem called Forget Me Not that encapsulates my experience living with this condition. It was published by Dementia Singapore in 2023.
